UK Disability Resource of Disabled Needs

pixie · Site Admin Joined: 16 Jun 2007 Posts: 1851

Please introduce yourself and tell us a bit about you and your special children.

barbsy · Super Member Joined: 19 Jun 2007 Posts: 570

what can i tell you, well i have two children both adorable and i love em to bits. both have autism and different degrees of disability and medical problems, one also has adhd. the little one is 9 and does a split school week between mainstream and special school, and my eldest is 21 and in a wonderful care home with 5 young adults and brilliantly supported, tough decision having her leave home but definately been the making of her. im on my own having lost my dear husband two years ago suddenly and life is pretty isolating much of the time, but we get through. im sure you will learn more about me as time goes on. hope to hear your stories too. barb.

pixie · Site Admin Joined: 16 Jun 2007 Posts: 1851

I am so sorry to hear of the loss of your huband. It must have been such a difficult time for you and your children.
I can only imagine how isolating it must be for you and I hope that you are finding some comfort in chatting to others who may understand a little of your situation.

I also have Autistic children. Two are adults really, at 26 and 21 but they are still my babies.

The other is 15 and still at his special school.

They are all fantastic kids but very hard work.

I am married but only since last Novemeber. After all these years together we decided we had better go for it.

Well that's just a bit about me and my lot.

jvz · Posted: Thu Jul 26, 2007 9:30 am Post subject:

Hi all. Some may know me from the ukcarers forum. I somehow finished up helping to look after the daughter of some friends who was born with severe brain damage. Earlier this year she died so I hope you don't mind me visiting even though I have never been a proper 24/7 carer and don't even do that anymore.
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Good friends are like stars... You can't always see them but you know they are always there.

pixie · Site Admin Joined: 16 Jun 2007 Posts: 1851

You are very welcome to join us.

I do remember you from uk carers forum and I was very sad to hear of your friends daughter's death.

Being a carer is much more than being there 24/7. It's all about caring in so many different ways and I'm sure your friends were pleased to have you there for them while helping them to care for their daughter.

I look forward to reading your posts and getting to know you. I hope you will feel at home here.

jvz · Posted: Sun Jul 29, 2007 3:37 pm Post subject:

Thank-you. It's not been an easy adjusting to life without her but we will get there. Although I didn't have the ultimate responsibility of the little one I suppose I was also caring for carers and I think they are far harder to deal with.

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Good friends are like stars... You can't always see them but you know they are always there.

fairydust · Jr. Member Joined: 11 Mar 2008 Posts: 38

Posted this somewhere else but I think this is the right place for it.........Hello everyone....been meaning to come on-line and find a forum for Carers for a long time, but just never got round to doing it!!! I have 3 children 2 boys and one girl....the youngest boy Robbie has Arthrogryposis and is 17 yes those dreaded teenage years.

Looking forward to finding my way around the site and meeting some like mind people....cheers Jennie

pixie · Site Admin Joined: 16 Jun 2007 Posts: 1851

There's no hard and fast rules here so you post wherever you like.

I've never been one for rules.

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loudmouth · Posted: Tue May 13, 2008 8:49 pm Post subject: loudmouth

I was diagnosed Epileptic 4 1/2 years ago.My daughter is 10 and is ASD,she also has HMS(hypermobility syndrome),mild epilepsy and two dodgy heart valves.My middle son is 6,and is totally healthy,and my youngest son is 4 1/2 and has global development delay,ASD,HMS,Chronic asthma,and hypotonia(extremely low muscle tone)Sorry if I forgot anything,the lists seem to get longer each week.

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single mum,epileptic,3 kids,eldest hypermobility,faulty heart valves,epilepsy and youngest has G.D.D,hypermobility,hypotonia.