UK Disability Resource of Disabled Needs

pixie · Site Admin Joined: 16 Jun 2007 Posts: 1979

Good evening to you all.

It's the first chance I've had to get on here today so I hope I haven't missed the birthday celebrations.

It's been so busy here with things to do that I didn't expect.

I hope everyone has had a good day.

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angel28 · Posted: Fri Jan 18, 2008 7:24 pm Post subject:

Thank you for the advice.... Yes Im just starting to celebrate !!!! so where is everyone????? drinks are on me!!!!

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Hi I am single Mum of 3 children,1 has trisomy 21 & ring 21,severe epilepsy,autistic tendancies,partial blindness,hypotonic muscles,lactose intolerance,general global developmental delay. Also son who has ADD,ASD,Epilepsy and perception evasive syndrome.

Rabid · Posted: Fri Jan 18, 2008 10:28 pm Post subject:

barbsy · Super Member Joined: 19 Jun 2007 Posts: 570

just looking into see how everybody is.

has been a party, i always miss out, happy birthday.

hope everyone is well and enjoying the weekend. bit hectic here today.

barbs

Speeds · Posted: Sat Jan 19, 2008 6:33 pm Post subject:

Evening All

Sorry I did not make it last night - had some not so good news.
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Karen, Dominic, Thomas, Zola and Belle

http://www.flickr.com/photos/the_hues/

pixie · Site Admin Joined: 16 Jun 2007 Posts: 1979

Sorry to hear that Speeds, you know where I am if you need to chat. xx
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Rabid · Posted: Sat Jan 19, 2008 10:34 pm Post subject:

Speeds · Posted: Sat Jan 19, 2008 10:40 pm Post subject:

Thanks Pixie and Rabid.

Nothing sort of unexpected but my uncle who has cancer in several places has been told there is no more treatment. My Auntie is of course beside herself that they have "sent him home to die". He is my Dad's twin brother (my dad died in 1985) and he was 78 last year. Obviously I am upset although working in the field I am more aware of cancer than my Auntie. So last night I just felt a bit drained as I had spent time talking to my Auntie and trying to understand everything the doctors had said. Trouble is too is that she is telling me things which are like a needle in a haystack as she does not know the answers.

I have been trying ot do some research tonight but not knowing all the relevant details makes that difficult. I will be speaking to her on Monday after she has spoken to the hospital again.
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Karen, Dominic, Thomas, Zola and Belle

http://www.flickr.com/photos/the_hues/

pixie · Site Admin Joined: 16 Jun 2007 Posts: 1979

That must be very difficult for all of you and I do feel for you very much.

Don't try to take on too much yourself. ie the research, you will wear yourself out and not be able to support your Aunty as much as you would like.

I'm sure your best way forward is to be there for her and your Uncle so that they have someone to lean on at a time that will be very hard for them both and for you too.

Maybe when she has talked to the consultant things will become clearer and then you could look into it further if you wanted to and felt the need to.

Stay strong Speeds. xx
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barbsy · Super Member Joined: 19 Jun 2007 Posts: 570

just wanted to say i am so sorry your having such a sad time at the moment, im sure you will be a wonderful support to your aunt and uncle.

remember you have to look after yourself too.

love barbsx