UK Disability Resource of Disabled Needs

It looks like it may already be very useful info for others too.

Here's a link to the Coeliacs Socity website
http://www.coeliac.co.uk/

Again, you may already know this but McDonald's is fine, just avoid the bun and extras. My son has 3 pieces of burger meat with large fries...they put it through as a double cheeseburger.....and the ketchup there is fine too.

Also if you take a gluten free pizza base into Pizza Hut (we use the schar ones) they can put their tomato sauce on it and toppings and its almost all gluten free. My son has triple cheese on his. They usually dont charge at all, and on the odd occasion they do its only for the toppings. I just remind them to cook it on the paper that comes with the schar ones and to cut it with a clean cutter.

I guess I'm lucky that my kids hate McD's. I think it's because they are older maybe and also veggie.
She does sometimes go to Pizza Hut though so I'll tell her about that, thank you.

My daughter got some Juvela pizza bases which she's cut into quarters and frozen for when she want's to make her own. She's bought a pizza topping (GF) and some garlic butter to put on them.

The Juvela bread we freeze after removing it from it's wrapper and putting the bread into a freezer bag.
If you don't remove it from the wrapper it comes in it will explode in the freezer as it's a long life product.

Are you using the "fresh" juvela bread that is relatively new, or the long life stuff?

We are not too impressed with the "new" fresh stuff, its great the first three days but then you have to freeze it and its not very good.

We use the long life, we never freeze it as he goes through a loaf in a maximum of four days and its fine for that length of time. It doesn't "last" though, we have found. You can microwave it, let it cool then make lovely sandwiches but if you dont eat them within about an hour they go manky.....a big problem for packed lunches for school and we have never found a solution other than what we do now, he takes basically a load of crap - fruit, baby bel, crisps, choc and a biscuit.

also meant to say we make garlic bread....order on prescription the GF scar baguettes.they are long life.cut a few slices off, make garlic butter by mixing sunflower spread with very lazy garlic, spread both sides and bung them in the oven for about 15 to 20 mins...my son and all his non coeliac frinds love it!

make spaggy bol with the Dolmio Original sauce, pound of mince, chopped onions, garlic and mushrooms, with GF schar spaghetti

I have just realised I may be coming across as an advert for schar products, sorry dont mean it like that, just telling you the ones we have liked then best, juvela are brilliant too!

Sorry for taking so long to get back to this thread but I've had internet connection problems so I'm busy catching up.

I use the long life bread. It's the fibre loaf and it's lovely. We thought about the fresh bread but it is only white and my daughter needs fibre due to her bowels probs.

We do freeze it once it's been repackaged. We defrost what she needs overnight in the fridge and then she micro's it in the morning and eats it at lunchtime. She's not said it tastes horrid or anythng. In fact just the opposite, she loves it.

We still have the pizza bases that Juvela sent us as a sample and my daughters cut them into quarters and frozen them. She's not tried them yet so I can't report what she thinks of them.

I am very grateful for all and any tips to pass onto my daughter. She does seem to be managing the diet very well though which has surprised me as she has many problems with food.
Mostly that she eats anything and lots of it. I was going to look into Prada Willi to see if she may have a form of the disorder but as she's doing so well with this diet it may well be that she just had to eat because her body was craving gluten. I know when you have an intolerance your body craves the foods it is intolerant to.
We will see how this goes and take it from there.

ooh maybe we should try the fibre loaves for sandwiches, maybe the bread "lasts" better - will give it a go. If I can think of any more tips etc I'll post them here, but you do seem to be very well up on it.

My son is well miffed that he can't eat ordinary pizza's, he knows he'd love them...he also absolutely adores the smell in Greggs bakery, and there's nothing in there he can have

Just a quick post to say that my daughter went to the GP today and he very readily agreed to supply the gluten free foods on prescription.

The GP could see the difference in her behaviour/eye contact/the fact that she spoke to him, etc. and he is made up that she's now in full time employment.

brilliant news, pixie!!