UK Disability Resource of Disabled Needs

Rabid · Posted: Tue Oct 16, 2007 2:56 pm Post subject:

Hi Filip
Welcome, its great to see you.

I'm glad you came to join us.

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Speeds · Posted: Tue Oct 16, 2007 4:35 pm Post subject:

Welcome Filip

Lovely pictures too
_________________
Karen, Dominic, Thomas, Zola and Belle

http://www.flickr.com/photos/the_hues/

hbrac · Joined: 28 Oct 2007 Posts: 3

Hello peeps.

I found your website through a link on the holidaychat website. I have a 20 year old son with an autistic spectrum disorder who now lives semi independantly in the community with carer support.

He attended a special school of my choice ( after a fight with the Education Authority...sounds familiar ??

) from age 5 then went onto a special needs college at age 16 for 3 years.

He has made so much progress we're really proud of him. When I look back to how he was when he was young I would never have believed that he would have got this far.

So I hope that I can give a bit of help and support to anybody else in a similar situation. I have had my fair share of trials and tribulations and ding dong battles with "the establishment". All I can say is that you have to keep fighting for your child and if you know in your heart that things aren't progressing how you want it then keep making a nuisance of yourself. Normally they cave in in the end just to get rid of you !!

Rabid · Posted: Sun Oct 28, 2007 11:19 am Post subject:

Hi hbrac
Welcome

Unfortunately, your story of the battles with the education system is all too familiar with many people

It is great to hear he is making such great progress now though.

It can be tough at times eh?

Glad you found us

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pixie · Site Admin Joined: 16 Jun 2007 Posts: 1968

A big welcome from me.

I know what you mean about the battles. We continue with ours.

We have 3 with ASD. A young man (26) who lives semi independently. He now works fulltime and has a girlfriend, so fingers crossed.

A daughter (21) who has just started full time work too. We also have our fingers crossed but she seems to fit in and cope very well so far.

And a son (15) still at his specialist school locally to us. He started there when he was 11 but we first asked for the school when he was 5, so you can imagine the battle that we had. We home educated him rather than send him into the lions den as he tried but couldn't cope with mainstream.

I'm so glad your son is doing so well, long may it continue.

I hope you enjoy the forum and soon feel at home here. xx

hbrac · Joined: 28 Oct 2007 Posts: 3

Thank you for the warm welcome folks. I will definitely be popping in when I can

Speeds · Posted: Sun Oct 28, 2007 6:17 pm Post subject:

Welcome from me too.

I have a 6 year old son with Prader Willi Syndrome. So far I have been very lucky in the help I have but it is a struggle to keep Speech and Language and OT on track although that has greatly improved after a lot of feet stomping. Usually the mention of my solicitor has meant action although it is a real struggle sometimes. Somehow some people making the decisions live in a world which is so far away from the ones we all have to live in day in day out.

I know it is very frustrating though - I have a friend who is trying to get a statement for her daughter but unfortunately she is falling down those gaps - life can be very difficult.
_________________
Karen, Dominic, Thomas, Zola and Belle

http://www.flickr.com/photos/the_hues/

hbrac · Joined: 28 Oct 2007 Posts: 3

I know lots about foot stomping Speeds

Good luck with your son.

myra · Posted: Sun Oct 28, 2007 10:20 pm Post subject: hi there

hi there,

hope you dont mind me joining in, my kid is a little older he is 33 with severe learning difficulties,slight cerebral palsy, no speech,severe epilepsy
doubly incontinent.

i also work in special education as a classroom support worker with 17/18year olds with various disabilities,but all with severe learning disabilities.

myra

pixie · Site Admin Joined: 16 Jun 2007 Posts: 1968

You are very welcome myra. Mine are older too at 26, 21 and 15.

It sounds like you are a very busy lady. I know it is very hard work but rewarding too.

My 21 year old has just started work as a TA in a special school for children with severe disabilities. She has Autism, Tourette's and a few other letters after her name but she's managing very well so far. Fingers crossed.

Good to have you on board.