Welcome

pixie · Welcome

Welcome to this forum.

It is a place to talk about our special children and their disabilities.

I hope you will feel at home here.

pixie

and welcome to rabid.

I hope you soon feel at home here.

barbsy · newbie here

hello and good morning, i have just become a member and am looking forward to being a part of this new forum, thankyou to pixie for making a place for us to come and share info with other families etc. barb.

pixie

Welcome to the forum Barbsy.

wave

Rabid · Re: newbie here

pixie

Welcome to the forum Wendy. I hope you will enjoy it here.

wave

wendy

Hello,
It is lovely to be here.
I will try and pop in when I can.
Good luck.
Wendy
xx

pixie

Thanks Wendy, it's lovely to see you.

You're welcome anytime you get a chance to pop in.

wave

pixie

Welcome to the forum Sue.

I hope you enjoy it here.

Rabid

Welcome aboard Sue.

pixie

Welcome johnvb.

Nice to have you on board.

Rabid

Welcome aboard Johnvb.

barbsy

and welcome from me to, look forward to reading all your posts.

pixie

Welcome Paula, nice to have you aboard.

I hope you will soon feel at home here.

Rabid

Welcome Paula hello2

.

pixie

Welcome aboard Welshie.

I look forward to reading your posts.

Rabid

Welcome from me also

.

welshie

thank you for the welcome

look forward to posting

barbsy

oops i think i missed a welcome

i had better say welcome to everyone cos im not sure who i missed

Tanya

What a lovely place i shall visit when ever i can I have a son that is profoundly autistic so it will be good to be with others that understand our situation

pixie

Hi Tanya and welcome.

Several of us also have Autistic children so we will all understand.

I hope you enjoy it here.

Rabid

Welcome Tanya

.

Tanya

barbsy

im sure you will love it here...looking forward to reading your posts.

barbsy

pixie

Welcome to our latest member lemming.

Looking forward to reading your posts.

Rabid

Welcome Lemming.

.

barbsy

and from me too

barbsy

magnolia · Hello

I am Jane, Mum to Sarah also known as Lexie who is 13 and has Downs Syndrome

Jane x

pixie

Welcome Jane.

Looking forward to reading your posts and getting to know you.

Rabid · Re: Hello

pixie

Welcome aboard jvz.

pixie

Welcome to our newest member Alice Cooper.

Rabid

Welcome aboard everyone, its great to see you here

I hope you enjoy your time here.

Cheers

welshie

big welcome from me too

barbsy

welcome from me aswell, sorry i missed this.looking forward to reading your posts. barb

pixie

Welcome to Eun our latest member.

barbsy

welcome from me too i look forward to reading your posts and am sure you will enjoy your time here.

best wishes. barb.

Rabid

A big hello and welcome from me too

.

welshie

hello and welcome form me too
Rachel x

pixie

Welcome to our latest member lissypie.

I hope you enjoy the forum. Looking forward to getting to know you.

barbsy

welcome from me too,what a wonderful name you have.

barbs

Rabid

welshie

welcome from me too xx

pixie

Welcome to our latest member Kimdim.

Rabid

Dee

Hi Everyone i am mom to a 16 year old ds with semantic pragmatic language disorder ,ASD traits ,Anxiety issues and learning difficulties
and my dd who is 14 who has Classic autism , severe learning difficulties ,challenging behavior and she is non verbal with Epilepsy

newb

xx

pixie

Hello Dee and welcome to the forum.

Looking forward to getting to know you.

pixie

I've just realised Dee that your website has a link on here already but I've made it more prominent now as it was hidden away a little.

Rabid

Hi Dee. Welcome aboard.

.

barbsy

hello dee a big welcome from me too. look forward to hearing more form you.

barbs

pixie

Welcome to ozbird our latest member.

Looking forward to getting to know you.

Alice Cooper

Welcome aboard Ozbird wav

pixie

Welcome to Chaos, our latest member.

Rabid

And a big welcome to Chaos from me too

.

Chaos

Thanks for the welcome! I'm looking forward to speaking to you all. I'm mum to Christian aged 7 and Eve aged 5 who was 3 month prem and has quadraplegic athetoid CP, and as bright as a button!

pixie

Hi Chaos thanks for posting about your great kids.
It's a bit quiet on here today but I'm sure the others will be along soon to add to the welcomes.

Looking forward to getting to know you and yours.

barbsy

welcome from me also. looking forward to hearing more from you. i am sure you will enjoy your time here.

best wishes from barb

Speeds

Hello welcome from me and my mad house

pixie

Welcome to our newest member shorty.

Looking forward to getting to know you.

Rabid

barbsy

and from me too. look forward to hearing more from you. i am sure you will enjoy your time here. barb

pixie · Welcome to quiltingmay

Hi Quiltingmay good to see you here.

Rabid · Re: Welcome to quiltingmay

shorty

thanks for the welcome and apologies for missing this section, I just launched in posting

I am Carol, 47, single mum to a son Alex aged 14, he is coeliac.

I came across this site via the MFF support site when I saw you'd won an award - and well deserved!

If anyone needs any advice on a gluten free diet I'll be delighted to help, though I think it may end up the other way round and I will be asking you all for advice! I had no idea that a gluten free diet could help so many conditions.

I am going to recommend this site to members on my forum as I am sure it will be beneficial to quite a few of them.

I wont be around much but will try and pop in when I can, keep up the good work xxx

pixie

Thanks for the intro Carol and for all the great info about gluten free diets.
It's great to know my daughter is not alone with the diet and that we can share bits of advice.

Pop in when you can, it'll always be great to see you.

Thanks also for your kind words regarding my award. I can't wait for my prize to arrive. I hope your forum also wins your section. It looks very promising. I have my fingers crossed for you and your members.

Please feel free to post your forum on here Carol as I'm sure it will interest the members.

shorty

pmsl, I had no idea we had entered for an award!!!! Will have to try and keep my finger on the pulse more

I will happily post a link to our forum, not sure if I put it in here? But I want to stress, I really dont want to try and take members from here over to our site, I am actually more interested in getting some of our members to join here as I know they'd get a lot from it x

pixie

Thanks Carol, I'll pop a link on the links thread for you. I hope that's OK with you.

Have a lovely day and thanks for all your help.

shorty

thanks pixie! x

Filip

Hello my English friends am from Poland and i have son with down's syndrome,ur forum is very intresting,good luck and sorry my english

pixie

Hello Filip and welcome to the forum to you and your family.

Your English is very good so I am sure we will understand each other. I don't speak any Polish I am ashamed to say.

I hope you will enjoy our company and feel at ease here.

Rabid

Hi Filip
Welcome, its great to see you.

I'm glad you came to join us.

.

Speeds

Welcome Filip

Lovely pictures too

hbrac

Hello peeps.

I found your website through a link on the holidaychat website. I have a 20 year old son with an autistic spectrum disorder who now lives semi independantly in the community with carer support.

He attended a special school of my choice ( after a fight with the Education Authority...sounds familiar ??

) from age 5 then went onto a special needs college at age 16 for 3 years.

He has made so much progress we're really proud of him. When I look back to how he was when he was young I would never have believed that he would have got this far.

So I hope that I can give a bit of help and support to anybody else in a similar situation. I have had my fair share of trials and tribulations and ding dong battles with "the establishment". All I can say is that you have to keep fighting for your child and if you know in your heart that things aren't progressing how you want it then keep making a nuisance of yourself. Normally they cave in in the end just to get rid of you !!

Rabid

Hi hbrac
Welcome

Unfortunately, your story of the battles with the education system is all too familiar with many people

It is great to hear he is making such great progress now though.

It can be tough at times eh?

Glad you found us

.

pixie

A big welcome from me.

I know what you mean about the battles. We continue with ours.

We have 3 with ASD. A young man (26) who lives semi independently. He now works fulltime and has a girlfriend, so fingers crossed.

A daughter (21) who has just started full time work too. We also have our fingers crossed but she seems to fit in and cope very well so far.

And a son (15) still at his specialist school locally to us. He started there when he was 11 but we first asked for the school when he was 5, so you can imagine the battle that we had. We home educated him rather than send him into the lions den as he tried but couldn't cope with mainstream.

I'm so glad your son is doing so well, long may it continue.

I hope you enjoy the forum and soon feel at home here. xx

hbrac

Thank you for the warm welcome folks. I will definitely be popping in when I can

Speeds

Welcome from me too.

I have a 6 year old son with Prader Willi Syndrome. So far I have been very lucky in the help I have but it is a struggle to keep Speech and Language and OT on track although that has greatly improved after a lot of feet stomping. Usually the mention of my solicitor has meant action although it is a real struggle sometimes. Somehow some people making the decisions live in a world which is so far away from the ones we all have to live in day in day out.

I know it is very frustrating though - I have a friend who is trying to get a statement for her daughter but unfortunately she is falling down those gaps - life can be very difficult.

hbrac

I know lots about foot stomping Speeds

Good luck with your son.

myra · hi there

hi there,

hope you dont mind me joining in, my kid is a little older he is 33 with severe learning difficulties,slight cerebral palsy, no speech,severe epilepsy
doubly incontinent.

i also work in special education as a classroom support worker with 17/18year olds with various disabilities,but all with severe learning disabilities.

myra

pixie

You are very welcome myra. Mine are older too at 26, 21 and 15.

It sounds like you are a very busy lady. I know it is very hard work but rewarding too.

My 21 year old has just started work as a TA in a special school for children with severe disabilities. She has Autism, Tourette's and a few other letters after her name but she's managing very well so far. Fingers crossed.

Good to have you on board.

Speeds

Hello Myra

Welcome from me too. Nice to hear about you and your family and job.

barbsy

hello myra and welcome

i have 12 years between my children, one of 22 and one of 10, both autistic with other disabilties alongside.

look forward to hearing more from you. i am sure you will have lots to read here.

best wishes, barbs

Filip

Welcome/Witaj from me too Myra

myra

thanks for the warm welcome folks, it will be nice to talk to others who understand where i am coming from

myra

pixie

Looking forward to getting to know you Myra and I hope you soon feel at home here.

pixie

Welcome to Tinkerbell, our latest member.

Tinkerbell

Hi everyone,

My name is Trish, I have two children (both under 6 - girl & boy) and two teenage step-children (boy & girl).

I am a professional busy body (SW). Both of the boys have a rare condition called PTU with other unknown conditions. We are lead to believe that there are only 6 children in the world with the condition.

The boys are both visually impaired and their other symptoms follow ataxia - however all test have so far ruled this out, and are classed as having ataxic like movements. My step-son also has learning disabilities and attends a special school. My son is still to young to know if he will have LD

None of the doctors involved know what to do or were to go next and they claim we are the experts .... very reassuring

Speeds

Welcome from the Hue family

pixie

Hi Trish,

We have met on one occassion and our paths have crossed on the internet a few times.

How is that young man of yours doing.

I hope you are all keeping well. It's nice to have you on the forum. I hope you enjoy it here. xx

Welcome

newbie here

Re: newbie here

Hello

Re: Hello

Welcome to quiltingmay

Re: Welcome to quiltingmay

hi there

UK Disability Resource of Disabled Needs