UK Disability Resource of Disabled Needs

Thomas, as you know has PWS which presents with development delay.

He was out of nappies at 4.25 years during the day and never looked back.

For nights, up until about 5 weeks ago he was wearing Dry Nites.

We often talked to him about not wearing a nappy as for most nights it was dry.

Then..........5 weeks ago he decided that he did not want to wear nappies at night anymore - so we stopped.

Since then he has only wet the bed once which is fab.

BUT here is the problem. The other night and last night he has got up to use the toilet but been disorientated. He wee'd one time in his room against the bookcase and then last night in our landing/hallway. The bathroom is right next to his room but last night he turned the wrong way. He has on both occassions removed his PJ bottoms so he is aware he needs to go and is probably awake enough ton go but is obviously not going to the right place. I only find this out when I get up.

This morning for example I knew he had been for a wee because he came in to our bed with no PJ bottoms on.

Any suggestions on how I can help him? Obviously as I am asleep and as Thomas has never been a problem at night sleeping wise we just do not hear him get up.

Many thanks
xx

That sounds like a difficult problem Speeds and so embarrasing for Thomas.

Do you leave a light on in the bathroom and leave Thomas's room door open? As that seems to be one solution to help him not feel so disoriented so he can see without any doubt which way to go.

The only other thing is if he is very tired and therefore confused and too sleepy when he wakes to use the loo.
Or maybe he is worried about something or having bad dreams without being aware when he's awake in the morning.

I hope you manage to get this sorted out for Thomas. I know I'm not much help as my lad was still in nappies and pads until he was around 8 but I hope these ideas are helpful in some way. xx

Thanks Pixie - so no magic wand then

His bedroom door is open. No we do not have a light left on and we could do that - good idea.

He never seems to be disoriented enough to find which bed I have ended up in though

He is not embarassed too much about it at the moment because it is a disjointed event. He says sorry but if I did not point it out to him he wold not know he had done it.

Anyway - early days - we are thrilled he has decided not to wear nappies and is actually waking up and not wetting the bed - everycloud has a silver lining but a grey exterior

I am hoping he will just grow out of it. TBH with the exception of things to do with muscle hypotonia his development is just fine - delayed but he gets there in the end - so hopefully he will take a little while longer than expected and these different locations will be short lived.

sorry cant help as garry although 33 still wears pads/nappies he is doubley incontinent only had 2 weeks when he was 10 that he was dry.

the other 2 boys were dry at around 18 months

myra

I know I'm really late with this but I'd leave the bathroom door ajar with the light on - people naturally "follow the light" and hopefully it will lead him in. If it's the only light on, anyway.

OO eerrr - now I feel really bad. I mentioned those two episodes and then since then he has not had a single accident or wet bed. I am a very proud mummy.

Sorry - I should have thought to post.

Than you for all your help though - just telling others helps a lot

Well done Thomas. wav